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Woman Shares Decades-Long Battle with Vision Loss and Autoimmune Disease
A young woman, known online as q, has shared her profound and challenging journey through progressive vision loss, stemming from an autoimmune disease diagnosed in her early childhood. At just two years old, she was diagnosed with juvenile rheumatoid arthritis, which subsequently led to uveitis, an inflammatory eye condition. By age six, she developed glaucoma, requiring multiple surgical interventions, including tube implants to regulate intraocular pressure and cataract surgeries. She credits early and specialized care at Johns Hopkins Hospital in Baltimore, Maryland, for saving her eyesight at that time. Despite a period of remission during her high school years, a traumatic eye accident in her sophomore year resulted in a globe rupture, severely compromising her vision. This incident necessitated her first cornea transplant, performed in 2017, which lasted approximately three years before failing. A second transplant followed in 2020. However, in 2023, she experienced complete vision loss in her left eye, describing her sight as a 'sheet of white' or 'milked over,' due to the failure of the transplanted cornea. Medical professionals have advised against further transplants for this eye, deeming them too traumatic and unlikely to succeed. Her left eye now perceives only light and shadows. The individual is currently navigating life with functional vision in one eye and is seeking support and resources from organizations like Chicago Lighthouse. Her story highlights the long-term impact of chronic illness and the resilience required to adapt to significant physical changes.
