A Mother's Love: Overcoming Challenges with a Rare Disease

In a quiet home in Nashville, Tennessee, a mother's love shines through in her daily routine with her two-year-old son, Jackson. Diagnosed with Nemaline Myopathy, a rare neuromuscular disease, Jackson faces daily challenges. His mother, Kaitlyn Schara, shares a touching video of Jackson playing with his Elmo toy to stay awake before his g-tube feeding. "Keep Jackson awake with me while loving on Elmo," she says in the video description. The video shows a tender moment of connection, highlighting the strength and resilience of both mother and child. "The love he has for Elmo is heartwarming," says Schara. The video has garnered significant attention online, demonstrating the power of shared experiences and the universal appeal of a mother's love.