Málaga Teen Defies Odds, Inspiring With Positive Outlook Despite Rare Disease

Málaga Teen's Inspiring Battle Against Nemaline Myopathy Málaga, Spain – Fifteen-year-old Iván Romera faces the daily challenges of nemaline myopathy, a rare muscle-wasting disease affecting only about 30 children in Spain. Yet, his spirit remains unbroken. In a touching interview with local newspaper Diario SUR, Iván and his mother, Mónica, shared their journey. "¿Para qué está la vida si no es para vivirla?" Iván stated, emphasizing his philosophy of life. His mother, Mónica, described the initial difficulty of the diagnosis, saying, "Al principio es difícil...Tú estás embarazada y tienes una expectativa." Despite the grim prognosis, Iván defied expectations, walking at just one year old. The family's resilience and Iván's zest for life are truly inspiring. The full interview can be found on SUR.es.